The Inheritance A Family on the Front Lines of the Battle Against Alzheimer Disease (Audible Audio Edition) Niki Kapsambelis Callie Beaulieu Tantor Audio Books
Download As PDF : The Inheritance A Family on the Front Lines of the Battle Against Alzheimer Disease (Audible Audio Edition) Niki Kapsambelis Callie Beaulieu Tantor Audio Books
Every 69 seconds, someone is diagnosed with Alzheimer's disease. Of the top 10 killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can.
The DeMoe family has the most devastating form of the disease that there is early onset Alzheimer's, an inherited genetic mutation that causes the disease in 100 percent of cases, and has a 50 percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, Karla, has inherited responsibility for all of them.
But rather than give up in the face of such news, the DeMoes have agreed to spend their abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer's research and offers the brightest hope for future treatments - and possibly a cure.
Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer's through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery.
The Inheritance A Family on the Front Lines of the Battle Against Alzheimer Disease (Audible Audio Edition) Niki Kapsambelis Callie Beaulieu Tantor Audio Books
Niki Kapsambelis went above and beyond creating this masterpiece. The research dedicated to telling the story of such a powerful disease impressed and overwhelmed me. Knowing some members of the family personally made this a very emotional read but I couldn't put it down. Thank you for sharing their story and advocating for them. What a blessing you are and an exceptionally talented author. My prayer is that this book will have a sequel entitled "the cure".Product details
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The Inheritance A Family on the Front Lines of the Battle Against Alzheimer Disease (Audible Audio Edition) Niki Kapsambelis Callie Beaulieu Tantor Audio Books Reviews
Enthralling book. This is both a compelling narrative of a regular American family and also insightful delve into medical progress made regarding Alzheimer's disease in the West. It's almost impossible to set down, and, unfortunately once you finish, you are acutely aware of another growing medical crisis currently unfolding in America. For all of our sake, I hope progress continues to be made! I am grateful to families like those chronicled in this book who have offered medical researchers and practitioners such intimate access into their lives, bodies, and very DNA.
I am an avid reader, and I typically relying on checking out books from the library because otherwise I would have an incredibly expensive hobby! However, after reading a review of this in the NYTimes, I knew that this was one book I would eagerly pay the cover price to get my hands on. I am so happy that I did, and highly and widely recommend this book to anyone with even a passing interest in any of the topics covered under the book. Once I finished, I found myself googling names of the family members and other actors chronicled in the book to learn about any subsequent developments (even though the book almost takes you right up until present day!). Especially in an age of increasingly accessible and acceptable DNA testing, this book is more timely than ever.
Adm Nimitz said Iwo Jima was where uncommon valor was a common virtue . . . that is the same for the DeMoe family. A family that willingly enlisted as soldiers to fight against a disease, Alzheimer’s, which robs us of our most cherished possession - memories.
For those that have fought or have family fighting this condition, the book will reconfirm many of the gut wrenching choices one makes helping a loved one through the disease progression. For those wanting a cure, the book reads like a crime novel with brilliant detectives scouring the globe searching and finding cures for the coming cataclysmic personal as well as economic tragedy.
At the end, it is a love story told of one family (also carried out in communities across the globe) sacrificing and caring for those they love.
Buy the book you will not be disappointed.
A must read for anyone with any connection or interest in Alzheimer's. Niki Kapsambelis' "The Inheritance" is the story of the impact of Alzheimer's on an actual family. For generations. The story is mesmerizing as is the research.
Wonderfully written book about an amazing family who is facing the unknown tragedy of genetic early onset Alzheimer Disease. The DeMoe family is participating in research to help us all learn and Niki Kapsambelis has written a book all should read to learn of the sacrifices by few for the good of all.
Thank you Demoes family and Niki for sharing this amazing life journey.
This is an excellent book about the heartache of the Demoe family and the Alzheimer's disease. Very informative about the disease and what the family is going thru. My husband and I personally know the family because we live in the same town. One of the Demoe family was our groomsmen at our wedding and it is so sad to see him now. This family has so much courage and optimistic about new research. This is definitely a must read book!
For me – for many people – few things are as frightening as the loss of self that Alzheimer’s inflicts on its victims. Writing with clarity, compassion, and insight, Kapsambelis brings us into the DeMoe family, cursed with early-onset Alzheimer’s, and shows us the damage wrought by the disease, the burden it places on everyone in its orbit, and the courage and strength of the family to give whatever they can to the greater fight against the disease. This powerful book also spells out the history of science’s understanding of the disease, the determined (and seemingly ever more hopeful) efforts of a handful of researchers to find a cure, and how the DeMoes’ have helped advance their efforts. That said, the book is no hagiography – we see the family’s flaws, their idiosyncrasies, and their fears and hesitations too – but, by showing us their humanity, the author helps us feel their hardships and their hopes more deeply.
By the end, I had to fight back tears over the accumulated losses the DeMoes (and others) had suffered, but I was heartened by how far the science of this disease has come, and how important that progress is. Perhaps the author’s greatest achievement is making the reader understand, on a visceral level, the human, financial, and societal toll that this disease will take on our society if no cure is found.
Speechless. What a magnificent book that delves deep into the science behind Alzheimer's disease and the search for a cure, and delves even deeper into the story of the incredible DeMoe family. I would highly recommend this book, especially if you have ever witnessed firsthand the devastating impact of Alzheimer's disease.
Niki Kapsambelis went above and beyond creating this masterpiece. The research dedicated to telling the story of such a powerful disease impressed and overwhelmed me. Knowing some members of the family personally made this a very emotional read but I couldn't put it down. Thank you for sharing their story and advocating for them. What a blessing you are and an exceptionally talented author. My prayer is that this book will have a sequel entitled "the cure".
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